Skin sample given today, for use in Ushers research - there is current research into a known genetic sequence (which I have) that could be targetted by gene therapy in the future.
Join our team for the 2020 HBF Run for a Reason!! https://www.registernow.com.au/secure/Register.aspx?E=37358&G=111460
Thank you to St Stephens Carramar for volunteering to kickoff our school vs school challenge - Thursday 24 October 2019
Eamon and Kealan's Story was broadcast on Channel 7's "Today Tonight" show, and can be found at this link: Eamon and Kealan's Story